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8Apr/100

Health 2.0 Europe or why I finally ventured away from North America

Posted by Kathleen Rose

More than 500 attendees representing 15+ countries assembled at this week's conference to hear from  leaders in online health from the Denmark, Germany, Hungary, the UK, the US, and many more. We heard about initiatives that  connect patients to physicians or to each other and use technology to integrate patients into health care systems.  We also learned about new self-care tools for patients and search engines or integrated platforms that provide content to patients and physicians.

After three years of conferences in the United States, the beautiful city of Paris was host to Health 2.0 for its European debut.  It was quite a success, and quite a new scouting experience for me.  As a volunteer, throughout this conference, I had a great look at the "behind the scenes" work that goes on. Working on the speaker  management team also facilitated networking.

Matthew Holt moderated the first session around search and content which consisted of 3.5 minute demos from Orphanet, MedWord, Health on the Net Foundation, Healthline Networks, Organized Wisdom, and Webicina.  The second session around patients and online communities was moderated by Indu Subaiya, and also included great demos from Pagine Mediche.it, ACOR, PatientsLikeMe, iWantGreatCare, imedo.  This session also included commentary by Alexander Schachinger from Humbolt University Berlin and Susannah Fox from Pew Internet Project.  The final session on Day 1 was moderated by Denise Silber and included demos of Sermo, Medting Doctors.net.uk, doc2doc, Neurosurgic, and Sante Log.

...to be continued

18Feb/100

More on the mHealth Networking Conference

In follow-up to last week's post about the mHealth Networking Conference, I thought I'd share some of the summaries that have popped up around the web.  Here they are, in no particular order:

Federal Telemedicine News: Status of Mobile Health

MobileHealthWatch.com: Mobile apps highlight possibilities, hurdles

SPEC: Smart Health Apps, Medical Devices and the Future of Mobile Health Debated

FierceMobileHealthcare: Mobile health technology leads the revolution

MobiHealth News: Does mHealth need a doctor's prescription? (probably!)

21Sep/090

Medicine 2.0 – A truly engaging conference

Posted by Kathleen Rose

1a2bf0595189__1253213220000When I scout “medical conferences,” I attend sessions, scribble notes, and retreat to my room in complete control of the television remote (a feat almost never achieved at home).  The “take home” is usually an update on the latest techno-medical snippets for colleagues interested in the future of medical education and assessment.

Medicine 2.0 was a unique experience for me.  Was it something about the size of the conference? The sense of community among participants and speakers?  The constant buzz generated from the concurrent sessions?  I’m not quite sure when it happened, but I became a participant rather than a spectator, and for the first time enjoyed a relationship with fellow conference attendees, even if it was via Twitter.  I experienced first hand the impact of social media (see my previous post).  I did stop short of fraternizing on the dinner cruise—not quite ready to relinquish the remote control.

During his opening statements, conference chair Gunther Eysenbach clarified the 1.0/2.0 thing.

  • Medicine 1.0 – what a mess it is today
  • Medicine 2.0 – what it could and should be

The keynote Gimme My Damn Data, given by cancer survivor and participatory medicine champion, Dave DeBronkart (aka e-Patient Dave), was thought provoking and quite moving at times.  Take home points for me included

  • Keep an eye on the movement toward decentralized medical care – how technology changes industry; the general hospital model is not sustainable
  • It’s a human right to have your health data – your life may depend on it
  • Peer controlled study data is not useful (woefully out of date) for the newly diagnosed
  • Physicians and patients as partners, makes for optimal medical care

The first panel discussion (Jen McCabe, Saad Alaam, Chia Hwu, Robert Fraser) responded to the challenges of

  • How to build confidence in social media
  • How to affect institutions with power
  • Vulnerability of putting yourself out there in online health care situations

Jen was as spunky as I expected, and during a later session had the audience shouting out micro choices we regretted and tweeting #getupandmove.

Reviewing the proceedings from the 2008 conference, it was obvious that there was a shift in the focus for 2009.  The majority of the sessions last year seemed to focus on tools and technologies, with this year focusing on the trends and movements around the social and participatory nature of Medicine 2.0. I hope to follow  up on connections with interesting “people in motion” and some of the resources I learned about that might facilitate medical education and/or the practice of medicine in the future.

I attended a number of interesting sessions and more detailed information about each session can be found on the Medicine 2.0 Official Blog.

  • Learning in a Virtual World: Using Second Life for Medical Education
  • What do residents really want? The Stanford Ether Project
  • Social Healthcare Networks: Connecting Patients and Clinicians
  • Enabling Semantic Health Apps: The MEDgle Clinical Decision Support Service API
  • Apomediationand Women’s Choices of Birth Place and Attendants
  • Improving Patient-Physician Communication about Internet Use
  • Twitt-ER: Using Twitter in the ER for Dispatch, Order Communication, Patient Alerts, and Progress Reports
  • Solas a Virtual Community for Children with Cancer
  • Facebook: Awareness-raising, Fundraising and Support for People Affected by Breast Cancer
  • ScanGrants: Reaching out to Researchers in the Health Sciences www.scangrants.com
  • Bikmas 2.0: A Biomedical Knowledge Management Antenna System
  • OrphanData.org: Enabling Transdisciplinary Scientific Collaboration Using Web 2.0
  • Implementing Participatory Medicine Strategies and Exploring the Evolution of Choice/Control Aware Care

17Sep/090

I’m all a’twitter or am I a tweeter?

Posted by Kathleen Rose

c1727961a188__1253213079000Because of my interest in social media, especially as it relates to healthcare and medical education, I’ve heard about Twitter. I’ve even tweeted on occasion.  I tweeted twice before today, and have found Twitter useful for keeping track of my favorite medical blogger, Berci Mesko of Scienceroll. I have two followers, a coworker and my son's friend.  In my wildest imagination, I never thought I’d be tweeting through the entire first day of the Medicine 2.0 Conference.

During the opening address this morning, there were two different display screens. One to show presentation slides and the other a steady stream of Twitter posts--or Tweets.  I was busy scribbling notes with my trusty low tech #2 pencil (pictured above) and noticed that many of my scribblings were flashing by on the Twitter feed.  It was one of those moments that makes you go hmmm...

I turned on my laptop and logged in to my Twitter account, and started taking notes.  I mimicked the other tweets by adding what they called a “hash tag.”  I prefaced other people’s Twitter usernames with @, although I wasn’t sure at first why I was doing that.  Soon I was tweeting with the pros, and a funny thing happened.  Someone referenced one of my tweets in their tweet.  Is that a retweet?  OMG my name in lights @r0wsbud!  While I was using Twitter as a note taking tool, for my own selfish purposes, someone found one of my tweets worthy of note.  Hey, I thought, what if other people found my tweets useful?

So, I tweeted and I tweeted and I tweeted, and another funny thing happened. The counter showing my followers changed to 3, then 4, then 5, and so on.  I had this Twitter account with 2 followers for a year, and in a matter of hours, 19 people were following my tweets.  Maybe these folks will wander on to our blog on occasion; maybe I’ll make connections with some  “people in motion” with whom we might brainstorm or collaborate on a project.  Maybe I’ll get a raise this year--okay I am asking for a little too much.

Anyhow, today I shared my notes with the entire Medicine 2.0 Community, and they shared theirs with me.  Later I’ll review the feed using that #med2 hash tag I mentioned earlier and use all of my notes and about a million others to write a new post about the conference itself.  But for now I think I’ll reflect on what happened to me today and perhaps consider retiring my #2 pencil.