More than 500 attendees representing 15+ countries assembled at this week's conference to hear from leaders in online health from the Denmark, Germany, Hungary, the UK, the US, and many more. We heard about initiatives that connect patients to physicians or to each other and use technology to integrate patients into health care systems. We also learned about new self-care tools for patients and search engines or integrated platforms that provide content to patients and physicians.
After three years of conferences in the United States, the beautiful city of Paris was host to Health 2.0 for its European debut. It was quite a success, and quite a new scouting experience for me. As a volunteer, throughout this conference, I had a great look at the "behind the scenes" work that goes on. Working on the speaker management team also facilitated networking.
Matthew Holt moderated the first session around search and content which consisted of 3.5 minute demos from Orphanet, MedWord, Health on the Net Foundation, Healthline Networks, Organized Wisdom, and Webicina. The second session around patients and online communities was moderated by Indu Subaiya, and also included great demos from Pagine Mediche.it, ACOR, PatientsLikeMe, iWantGreatCare, imedo. This session also included commentary by Alexander Schachinger from Humbolt University Berlin and Susannah Fox from Pew Internet Project. The final session on Day 1 was moderated by Denise Silber and included demos of Sermo, Medting Doctors.net.uk, doc2doc, Neurosurgic, and Sante Log.
...to be continued
When I scout “medical conferences,” I attend sessions, scribble notes, and retreat to my room in complete control of the television remote (a feat almost never achieved at home). The “take home” is usually an update on the latest techno-medical snippets for colleagues interested in the future of medical education and assessment.
Medicine 2.0 was a unique experience for me. Was it something about the size of the conference? The sense of community among participants and speakers? The constant buzz generated from the concurrent sessions? I’m not quite sure when it happened, but I became a participant rather than a spectator, and for the first time enjoyed a relationship with fellow conference attendees, even if it was via Twitter. I experienced first hand the impact of social media (see my previous post). I did stop short of fraternizing on the dinner cruise—not quite ready to relinquish the remote control.
During his opening statements, conference chair Gunther Eysenbach clarified the 1.0/2.0 thing.
- Medicine 1.0 – what a mess it is today
- Medicine 2.0 – what it could and should be
The keynote Gimme My Damn Data, given by cancer survivor and participatory medicine champion, Dave DeBronkart (aka e-Patient Dave), was thought provoking and quite moving at times. Take home points for me included
- Keep an eye on the movement toward decentralized medical care – how technology changes industry; the general hospital model is not sustainable
- It’s a human right to have your health data – your life may depend on it
- Peer controlled study data is not useful (woefully out of date) for the newly diagnosed
- Physicians and patients as partners, makes for optimal medical care
The first panel discussion (Jen McCabe, Saad Alaam, Chia Hwu, Robert Fraser) responded to the challenges of
- How to build confidence in social media
- How to affect institutions with power
- Vulnerability of putting yourself out there in online health care situations
Jen was as spunky as I expected, and during a later session had the audience shouting out micro choices we regretted and tweeting #getupandmove.
Reviewing the proceedings from the 2008 conference, it was obvious that there was a shift in the focus for 2009. The majority of the sessions last year seemed to focus on tools and technologies, with this year focusing on the trends and movements around the social and participatory nature of Medicine 2.0. I hope to follow up on connections with interesting “people in motion” and some of the resources I learned about that might facilitate medical education and/or the practice of medicine in the future.
I attended a number of interesting sessions and more detailed information about each session can be found on the Medicine 2.0 Official Blog.
- Learning in a Virtual World: Using Second Life for Medical Education
- What do residents really want? The Stanford Ether Project
- Social Healthcare Networks: Connecting Patients and Clinicians
- Enabling Semantic Health Apps: The MEDgle Clinical Decision Support Service API
- Apomediationand Women’s Choices of Birth Place and Attendants
- Improving Patient-Physician Communication about Internet Use
- Twitt-ER: Using Twitter in the ER for Dispatch, Order Communication, Patient Alerts, and Progress Reports
- Solas a Virtual Community for Children with Cancer
- Facebook: Awareness-raising, Fundraising and Support for People Affected by Breast Cancer
- ScanGrants: Reaching out to Researchers in the Health Sciences www.scangrants.com
- Bikmas 2.0: A Biomedical Knowledge Management Antenna System
- OrphanData.org: Enabling Transdisciplinary Scientific Collaboration Using Web 2.0
- Implementing Participatory Medicine Strategies and Exploring the Evolution of Choice/Control Aware Care